quality of life in patients suffering from beta-thalassemia major in amirkola, iran
نویسندگان
چکیده
abstract introduction: thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. materials and methods: this cross-sectional study consisted of 50 adolescents aged 12-18 years suffering from thalassemia major, out of which 30 were females and 20 were males with the mean (±sd) age of 15.38(±2) years old. the present study was carried out applying the kidscreen-27 health-related questionnaire. results: there was no statistically significant difference between urban and rural patients’ scores (p-value=0.22). comparison of quality of life amongst female and male patients indicated male patients' better scores in regard with physical well-being, psychosocial well-being and the total score of quality of life compared to the females (p-value<0.05). the total score of quality of life within adolescents with higher educated fathers was reported to be slightly higher than that of the other groups. conclusion: the study findings revealed that there was neither a significant difference between urban and rural patients with thalassemia major, nor a relation between adolescent patients' quality of life and their fathers’ education level. nonetheless, male patients were demonstrated to have better quality of lifethan females.
منابع مشابه
Quality of Life in Patients Suffering from Beta-Thalassemia Major in Amirkola, Iran
Abstract Introduction: Thalassemia is regarded as a genetic hematologic disease that affects various aspects of patients’ life. Measuring the health-related quality of life is a multidimensional concept that focuses on the disease as well as its treatment. Materials and methods: This cross-sectional study consisted of 50 adolescents aged 12-18 years suffering from Thalassemia major, ou...
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Background: Thalassemia is one of the most common genetic disorders in the world, especially in Iran. The study of various aspects affecting the physical and mental health of patients with beta thalassemia major has become more important. The aim of this study was to evaluate the Quality of life and some related factors in patients with beta-thalassemia major in Southwest Iran. Methods: In thi...
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beta- thalassemia major is a common hemoglobinopathy in humans. In some journals, numerous studies have reported different prevalence of hepatitis C among beta- thalassemia major because thalassemic patients need multiple blood transfusions and blood transfusion is a common transmission pathway for hepatitis C virus. Thus this study was performed for detection of anti-HCV between beta- thalasse...
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Background and purpose: Beta-thalassemia major is a genetic disorder with known globin defect that leads to chronic hemolytic anemia. Due to the need for recurrent blood transfusion, the risk of infectious diseases such as hepatitis is higher in these patients. Materials and methods: This cross-sectional study recruited 518 patients with thalassemia major in Amirkola Thalassemia Center, 2013-2...
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Background and aims: Nowadays introduction of regular blood transfusion therapy has obviously improved the life expectancy of patients with thalassemia. However, these patients face with newer challenges which influence their quality of life (QoL). In this study, the aim of this study was to measure QoL among patients with β-thalassemia major (β-TM). Methods:</str...
متن کاملQuality of life in patients with thalassemia major
Background With modern medical management, thalassemia major is now extending into adulthood and it is expected to have a negative impact on the quality of life (QOL) of the patients. The aim of this study was to evaluate quality of life in patients with thalassemia major. Materials and Methods This is an analytic case control study. Two hundred and fifty patients and 51 participants a...
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مجله تحقیقات سلامتجلد ۴، شماره ۳، صفحات ۲۳۴-۲۳۸
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